Anna is doing better. Our little hero is off all antibiotics after 3 months of continuous use. We have gotten into a daily rhythm with adding Anna's special needs into the daily routine. She is down to two treatments a day of nebulizer (Albuterol followed by Pulmozyme) and then 20 minutes of chest percussion. We've been doing one session in the morning and once before bed. we were told that if she continues to improve she will back down to one treatment session a day as her daily maintenance program. However, as of yesterday she has started coughing again... so we need to call our team and see what the plan is today. I listened to her lungs this morning and there is some congestion again.
The rallying support we received from our family, friends, co-workers these last several weeks has been overwhelming. Thank you to everyone. The army of people praying for Anna and our family has been amazing and edifying. Please do not stop praying. Until there is a cure for CF, she will not know life without daily treatment and taking capsules of enzymes every time she eats. Please pray that the new medications in the research and development "pipeline" are safe, effective and on the market soon. Please pray that her symptoms stay under control.
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